Who is this for?

xDo you have a lot of things going on with your health? Are you struggling to have your health worries heard?

Maybe memory, focus, or lack of time makes it harder to find the help you need

Health Heard is a new heath check -in service that puts you at the centre of your health picture.

Our main focus is on meeting the needs of those of us with Ehlers-Danlos syndromes, hypermobility syndromes, and related conditions like Marfan syndrome.

These conditions were once thought to be rare, but they’re often missed or mistaken for something else. They also tend to bring other health issues, which can make it even harder to get an accurate diagnosis.

These include Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation Syndrome, Autoimmune, Dysautonomia, Dysbiosis, IBS, chronic fatigue and pain, and many other serious illnesses and mental health problems.

Many of us are also neurodivergent, or have hidden disabilities, making finding suitable healthcare even harder!

The challenges we face don't just cover our physical health, but how we think and feel, and the barriers we encounter in society. I

Even when we are feeling well, it’s not always clear what to keep an eye on or how to do it. And the healthcare we need may not be available to us or even exist yet!
 

A young black man is looking at the camera. He is smiling thoughtfully. He has very short hair and brown eyes. His skin is medium brown. He is wearing a blue t shirt. Health Heard is here to change that.

By giving everyone the the right tools, help and hands-on support, we can help:

  • You and your family keep track of health concerns and share them so they’re listened to and acted on in good time.
  • Doctors and health professionals get a clearer, more detailed picture of your health, so they can better focus on what to do next.
  • Public health services like the NHS make sure that you get the right care at the right time, and better manage your health
  • Community health and care organisations provide better support by tailoring care to your wants and needs.
  • Researchers and innovators learn more about what is going on for us, and how best to help us.

Read what people who have used the service say here.

You might also like to read our Frequently Asked Questions.